Friday, September 21, 2012

My observations about Snicklebritches


I am going to share my observations about Snicklebritches. She is four years old and she attended ECSE last year. They had assured me she met all her goals on her IEP, but slowly I am beginning to discover that either she is losing skills OR the school was not completely honest about her abilities. For instance, Miss Teacher said that Snicklebritches is able to divide items by color even though she is unable to identify the color names. I have been trying for two weeks to recreate this ability they claim she has. I would set her up with her math frogs with index cards I had scribbled a matching color on and instructed her to group like colors on the same color card. She did not comply. I tried again with her “My Little Ponies”, grouping them into colors and then handing her a pony and asking her which group does this one belong with? She wasn't complying with my request then either, because she has a certain way the ponies go together and silly Momma was messing it all up. I got out her Lauri Kids Puzzle, collected all the pieces and hid the puzzle. I showed her how I was sorting them into three piles, one of each color. She divided them into piles, but not by color. Instead, she divided them by the action the kid was doing (jumping, running, or standing). Finally I got her frog math set back out to do the matching activity. She was able to do this perfectly every time, so she is probably not colorblind, just stubborn. It has to be a certain way and I just cannot get a peek inside her head to see how it works out in her mind.

On this same subject, she does not seem to recognize likenesses and differences of similar objects. With her counting frogs, they come in large, medium, and small. She does not understand that concept. They're all just part of the same set. I do know that she can recognize likenesses because she loves pairing up her dolls with the matching half, she keeps all the frogs together, she keeps all her “my little ponies” together, and so on. But when I ask her which my little pony is the smallest/largest/has wings/etc, she doesn't answer me.

The school had said that she CANNOT count. They are wrong on this one. Snicklebritches indeed can count to ten using sign language and to 30 using her voice. However, she cannot count objects. For example, if I give her 10 frogs, she will count to ten. And when I take one away and ask her to count them again, she should come up with 9, but she will count one twice and say she has ten. She can read the numerals 0-10. If it ends on a 9 with the numeral “9” under it, she will read it and say there's 9, but she doesn't seem to be able to understand the concept of counting objects. I hope I am making sense? She has the numbers memorized and loves the orderly logic way they are arranged, always the same every time. But she has not related numbers to objects. She knows there are 12 eggs in a carton, but does not understand that the number of eggs change every time we use some up. She thinks there are always 12 in there, even though I count it out with her, “1, 2, 3... etc to 8. Eight, 8. there are 8 eggs now.” She will count to twelve, pointing at some eggs twice. She gets stuck that if there should be a certain number, there's always that many there.

She cannot identify shapes, but she is able to do all kinds of puzzles and shape sorters correctly on the first try, even if she has never done a particular puzzle before. She is able to do the tangram thing they have at the Discovery Center on the first try each time and I can't do it. She must have a 3-D mind, able to pull things apart and examine from all angles in her mind while doing these puzzles. But ask her which is the circle and which is the square and she will shrug. Snicklebritches also does not understand positions. She doesn't know what I mean by behind the couch, under the bed, above the shelves, etc.This is why she tests so low on the cognitive evaluation.

ECSE has also claimed that Snicklebritches is good at using scissors. Uh... no. I have given her regular scissors, preschool scissors, and even the spring assisted scissors. Nope. She acts like nobody has ever handed her those before. I showed her hand over hand how to use the scissors and she had that awkward grip as if each time was her first time using a pair of scissors. So I won't be using the “I can cut!” workbooks I purchased and will go back to the basics of snipping thin strips of paper strips, play dough, etc until she is comfortable with the opening/closing action of using them.

They also claim she has a knack for drawing. I haven't experienced this. She does not even scribble anything remotely representing anything distinguishable. She will hold her writing instruments using a fist and she prefers to stab the writing surface repeatedly, ending up with many dots. She rarely scribbles and will do scribbles when I show her how much more color stays on the paper with this stroke. She'll always resume the stabbing motion for more dots. At least now I know all those pretty artwork sent home with Snicklebritches were actually done by the teacher's aides, not my daughter. But that's the thing... I prefer a messy unrecognizable piece of artwork over the recognizable but impersonal artwork.

Snicklebritches does not identify common objects. The school said she would say “swing”, but when I bring her to the park and ask her to lead me to the swings, she will look at me puzzled until I show them to her and then she will say “oooh, more swing please?” So she does understand the word swing, but does not identify this slinged device hanging from the bars as a “swing.” Same with being thirsty. She comes to ask for “More drink please.” I ask her where is her cup? She will stand there wondering what a cup is until I find it and ask her what this is. She will reply “More drink please.” But does not say “this is a cup.” It has been frustrating because sometimes I would like her opinion on what she might want for lunch rather than asking her if she wants this or that. She thinks in action and logistics, not in objects that has names. If I ask Snicklebritches “Go get me the hairbrush.”, nothing. But when I rephrase it as “Do you want me to do your hair? Go get the things I need;” she will then find the hairbrush for me.

But... she CAN label things. She's proven this. She loves to point at things on our body and identifying them. When I ask her where my body parts are, she correctly points to them. She does reverse chin/cheek, but having a deaf voice, these probably sound the same from me. She loves learning more new names for our body parts. She can point not only the usual cheeks, nose, eyes, chin, etc but also the philtrum, ala, tragus, etc. She also can find the right body parts on the dolls when I ask her “Where is the (fill in blank)?” She also seems to understand that humans are same yet some humans are different. Boys have something that girls don't have. Some people have darker skin that do not wash off because it's not chocolate and some people have broken senses. (Like her momma has broken ears, her brother has broken touching, and a family friend has broken eyes), therefore, she somewhat understands we humans experience the world using our senses.

So... there you go, I shared a bit about the mystery that my daughter is. I am positive that she is not learning disabled. Her brother definitely without a doubt is learning disabled, but Snicklebritches? No.... I believe she is just a stubborn late bloomer and that it's the best thing for everybody to just sit back and let her bide her time.  

Friday, September 14, 2012

An introduction



My name is Tishia. I am a deaf mother of hearing children, which is a challenge in itself and I am also happily married to a *gasp* hearing man. I've got two children at home and one living in a faraway state with his father. This blog will focus on the two little ones I've got here with me.

Wigglebutt is six years old. He has all the markers for Angelman Syndrome except the chromosomal analomy. He has baffled geneticists, neurologists, pediatric developmental clinicians, and the autism specialist. He tested on the spectrum as PDD-NOS. Pervasive Developmental Disorder; Not Otherwise Specified. It's a generic label slapped on the difficult life that we have with this sweet little boy. It does not begin to describe the bizarre behaviors that he exhibits. Although he is six, he is at the cognitive level of the average 18 month old. He is too challenging for me to exclusively homeschool, so my husband and I have prayerfully chosen to send him to the local branch of the state school for severely developmentally disabled children. I plan to afterschool him with handwriting since the school refuses to place anything related to scribbling, using writing instruments, and such to his IEP. I believe that my son is capable of learning to make meaningful marks on paper no matter what any of the specialists say.

Snicklebritches is four and a half years old. She went to Early Childhood Special Education (ECSE) since she was three. We were concerned with her speech development due to her having a deaf mother and when she was evaluated, they discovered she was also developmentally delayed. I disagree with that finding because she has not been cooperative, but the promise of daily speech therapy for free was very attractive so we went ahead and enrolled her despite our misgivings. We should have listened to God's whisper. Sure, her behavior around other children improved drastically. Before ECSE, she was unable to maintain her place in a line, but after ECSE, she is able to stay in line. Before ECSE, she was unable to sit still because she has a lot of energy (and what toddler doesn't?!) but after ECSE trained her to sit at a desk for much of her time at school, suddenly she was able to stay at the dinner table with us the entire meal. But what we had hoped to see improvements in, we didn't see. We hoped she would speak clearly and coherently. We hoped she would learn to use art materials in the appropriate way. We hoped she would learn to count. She babbles a lot, but still isn't carrying on meaningful conversations.

When we discovered the teacher had reprimanded Snicklebritches for correcting the teacher on how to sign “spider” during their fingerplay of “Eensy Weensy Spider”, we were shocked and angry. She is a CODA. A child of deaf adult. They are growing up bilingual. Snicklebritches became withdrawn and too shy to sign in front of other people since that incident. We decided to pull her and fully homeschool her. Hence this blog, which will chronicle our family's journey, stumbling blocks and all.